Lullaby Blankies is part of GSF's Mother's Day giveaway. The gift basket contains many goodies valued at over $400!!! Visit www.gwendolynstrongfoundation.com for more information. Here are the companies that have contributed to the gift basket!
This is an amazing video by the Gwendolyn Strong Foundation! This video shows what SMA is all about and how cruel of a disease it really is. SMA is cruel and has no mercy. It makes me so sad that these families take there baby home to start a new life and later learn the worst news a parent can hear,
" I am sorry, there is nothing we can do."
I have come to hate this cruel disease that is making it so hard for Brandon and I to start a family that we are longing for. I keep asking God, why does this happen? How can you take a child before they even had a chance to live? Why can't Brandon and I be the parents we so desperatly want to be? It so hard to not know the answers to all these questions. Many people say, "everything happens for a reason." But it is hard for me to find the reason in all this....
I just hope together we can all end this cruel disease!
Genetic tests for conditions that can be passed on to future generations should be more widely available before pregnancy, says the government's advisory body on genetics...
My husband Brandon and I are both carriers of the abnormal gene that causes SMA. Like many of you, we never heard of SMA before. When we found out we were both carriers, we were in shock. Like many of you we thought, " that could never happen to me." Well, it's very possible, 1 in every 40 people are carriers of SMA (that's 10 million Americans). We felt that day all of our dreams of having a family were shattered. Wanting so much to start a family, we learned of our options. One of those options is in-vitro fertilization. We recently embarked on the adventure of IVF and traveled all the way to NYC to start our family. We have had no success with IVF yet but will continue to fight for the family we are both longing for. Brandon and I have come to hate this cruel disease that is making our dreams of having a family not come true. Our goal is to spread awareness about this horrible disease, so that one day we can have a cure!
Come back and visit for updates on our journey with SMA
